We went to the Shriner's Clinic this morning and I am feeling a bit overwhelmed. B did fine, his scoliosis (sp) is under control other than some minor back pain and doesn't need any further treatment unless it gets worse.
They think J has a connective tissue disorder and I need to schedule an appointment with his regular dr for thorough testing, Marfan (sp) syndrome was mentioned. They are also trying to get him into the "Gait Clinic" at the main hospital because he is still having issues with walking.
Thinking of you here TNT. I'm real familiar with the 'clinics'. Not only for myself but my office is in the ped's clinic area of our rehab center. They sure do some pretty amazing things with these little guys and gals.